Celebrating Rare Disease Day
What is Rare Disease Day?
As scientific breakthroughs have emerged and modern forms of communication have connected patients, specialists, policy makers, activists, and support organizations across the word, the Rare Disease Community has grown and so has its passion to raise awareness in support of rare disease research and patient advocacy. In 2008, EURORDIS, a non-profit patient alliance of now nearly one thousand organizations from 73 countries, wanted to set aside a special day for combined efforts to raise awareness about the prevalence of rare diseases. Leap Day was specifically chosen for this special designation as it is a “rare” day that occurs only once every four years.
The first Rare Disease Day was celebrated on February 29th, 2008 by EURORDIS and its Council of National Alliances across Europe. The tradition quickly spread around the world, amplifying the voice of the rare disease community. Over the last thirteen years, the final day of February has been a day of hope, celebration, and awareness for people and families living with the daily repercussions of rare diseases. It is a chance for advocates, policy makers, and healthcare organizations to celebrate the wins; the research performed, the medications launched, and the patients who have received hope and the chance to live a more healthy life; while recognizing that there is much more research to perform, many more medications to launch, and still many more patients who are living with rare diseases desperate for answers.
PANTHERx Rare: Where Every Day is Rare Disease Day
PANTHERx Rare, now a part of Centene’s Envolve Pharmacy Solutions, is the one of the largest and fastest growing rare pharmacies in the United States. We dispense nearly two dozen rare and orphan medications while supporting tens of thousands of patients across the country through our proprietary RxARECARE® programs and SWFT® technology systems.
“We are constantly evolving, reimagining old programs and creating new ones for the benefit of our patients and their families,” said Rob Snyder, President of PANTHERx Rare. “We have cultivated teams of people who understand operations, business, leadership, and most importantly, rare diseases. Our associates provide every PANTHERx patient with a unique combination of clinical knowledge and personal empathy. We are so invested in the lives of our patients that their wins are our wins—at PANTHERx, every day is Rare Disease Day and we celebrate it.”
PANTHERx offers dozens of enhanced fully customizable services to our patients and partners ranging from rapid refill capabilities and patient text notifications to custom fulfillment and shipping solutions and tailored data analytics suites. Our technical and clinical capabilities shine in each of our programs, but it is our personal touch, our ethos of sincere care, that sets PANTHERx apart.
Rare Disease Day: Participate with PANTHERx
Visit rarediseaseday.org to find information about the thousands of events happening around the world on the last day of February. Follow PANTHERx on social media and like, comment on, and repost our Rare Disease Day posts to spread the word about this important day with your family, friends, and connections.
To download your own digital and printable media, please visit https://rarediseaseday.org/downloads
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About PANTHERx Rare
PANTHERx Rare, a Centene Envolve Pharmacy Solutions company, transforms lives by delivering medicine breakthroughs, clinical excellence, and access solutions to patients afflicted with rare and devastating conditions. Although the incidence is as common as diabetes, less than 7% of the 7,000 known rare and devastating disorders have an approved therapy. Changes in federal policy and advances in science have led to a surge in FDA orphan drug approvals, providing tremendous hope to the rare disease community.
PANTHERx was recently awarded Specialty Pharmacy of the Year by the National Association of Specialty Pharmacy (NASP) and earned the inaugural Accredited Distinction in Rare Diseases and Orphan Drugs from the Accreditation Commission for Health Care (ACHC). PANTHERx is a three-time winner of the prestigious MMIT Patient Choice Award, including the 2020 honor. PANTHERx is headquartered in Pittsburgh, Pennsylvania, licensed in all 50 states, and holds accreditations from URAC, NABP, and ACHC.
PANTHERx is pleased to announce the receipt of another Pittsburgh Business Times Best Places to Work Award, adding to a history of success.
Smart Business Magazine has announced that Dr. Gordon J. Vanscoy, Chairman & CEO of PANTHERx Rare & RareMed Solutions, was selected as a 2020 Smart 50 Award honoree. Since 2014, the Pittsburgh Smart 50 Awards have recognized the top executives from the 50 smartest companies in the Greater Pittsburgh region. Honorees are selected for their ability to effectively build and lead successful organizations, and for their exemplary performance in the areas of innovation, impact, and sustainability. This is Dr. Vanscoy’s second appearance on the Smart 50 list. He was previously honored as an awardee in 2016.
Ernst & Young LLP (EY US) announced today that Dr. Gordon J. Vanscoy, Chairman & CEO of PANTHERx Rare & RareMed Solutions, was named a 2020 Entrepreneur of The Year® East Central Award winner. As a regional award winner, Dr. Vanscoy is eligible for consideration for the Entrepreneur of The Year National Awards, to be announced in November during a virtual awards gala. The Entrepreneur of The Year National Overall Award winner will then move on to compete for the EY World Entrepreneur of The Year™ Award in June 2021.
PANTHERx Rare is proud to announce that it has been awarded a 2020 Top Workplaces by the Pittsburgh Post-Gazette. Awardees are determined by associate feedback to an anonymous survey facilitated by Energage. The survey measures 15 identified drivers of engaged cultures and successful organizations, including alignment, execution, and connection. This year PANTHERx is one of only 93 companies to make the Pittsburgh Post-Gazette’s List of Top Workplaces.
Celebrating the unstoppable entrepreneurs whose ambitions transform our world
PANTHERx Rare Pharmacy announces that it has, for a 5th time, been named to the Inc. 5000 list, celebrating the fastest-growing private companies in America. PANTHERx is being recognized on this prestigious national list in the top 25% of fastest growing companies overall and the 83rd fastest growing company in Health.
In accordance with CDC guidelines, PANTHERx has taken a multitude of steps and implemented safety measures for the health and wellbeing of our patients, associates, and their families.
PANTHERx Rare is proud to congratulate our Marketing Specialist, Ally Ayoob, on her recognition as a 2020 Pittsburgh Business Times 30 Under 30 honoree. Each year, The Pittsburgh Business Times identifies 30 individuals under the age of 30 years, who have accomplished exceptional career milestones and made great contributions to our Pittsburgh community. The 2020 honorees represent a wide range of industries, including rare pharmacy services, law, technology, manufacturing, and more.